Apert Syndrome
Andrew's Journey with Apert's, Apert Syndrome, Apert Syndrome, Apert Syndrome, Krista's Page, Swedish Apert Syndrome Information, Teeter's Page, TJ's Journal, What is Apert Syndrome?
Cleft Lip and Palate
American Cleft Palate/Craniofacial Association (AC, Born to be Cleft, Charleston Clefts, Inc., Childrens Hospital Los Angeles, Division of Plasti, Cleft Lip and Cleft Palate, Cleft Advocate, Cleft Club.com - Cleft Lip and Cleft Palate Suppor, Cleft Lip & Palate Association, Cleft Lip and Palate, Cleft Lip and Palate
Craniosynostosis
Parents of Children with Craniosynostosis (PCC), The Craniofacial Group - Paris, France
Parry-Rombergs Syndrome
Parry Romberg Syndrome, Parry Romberg Syndrome Information Page, Romberg's Syndrome, The Romberg's Connection
Stickler's Syndrome
Dave Hawley's Stickler Syndrome Page, Stickler Involved People, Stickler Syndrome Outreach - Oregon, Stickler Syndrome Support Group
Treacher Collins Syndrome
Microtia - Congenital Ear Institute, The Treacher Collins Family Support Group, Treacher Collins Connection, Treacher Collins Foundation, Treacher Collins Syndrome - A Personal View
AboutFace
International organization providing information and emotional support to individuals and their families affected by facial differences and disfigurements.
Acne Support Group
Information and support on acne, including top ten tips, beauty tips and problems.
Beneath the Surface
Offers support and understanding to individuals of facial difference.
Birthmark Support Group
From the UK-based group, giving information about birthmarks, the process of getting help, treatment centres, newsletters, diaries of events and links to other associated support groups.
Cancer Of The Eye Linkline (CELL)
UK-based helpline for people whose lives are affected by loss of an eye through cancer or trauma. Support, information and links.
Changing Faces
UK-based charity giving support and information to people with facial disfigurement and other facial differences and their families, and the professionals who work with them.
Children's Craniofacial Association
Dedicated to improving the quality of life for facially disfigured children and their families; addresses the medical, financial, psychosocial, emotional, and educational concerns relating to craniofacial conditions.
Crouzon's Bridge of Hope Foundation
Bridging the gap between hope and knowledge for those suffering with Crouzon Syndrome.
FACES: The National Craniofacial Association
Support and resources concerning craniofacial disorders including information on 28 specific craniofacial disorders. Financial assistance for secondary costs. USA based organization.
Foundation for Faces of Children
Expert information for families and health care professionals about craniofacial conditions.
John Hopkins Center for Craniofacial Development a
Provides information on research, education and clinical care for researchers and physicians. An educational interactive resource for families. Details activies at the Center.
Let's Face It USA
A nonprofit network for people with facial difference, their families, friends and professionals. Links professionals, patients, parents and communities to each other and to networks, books and articles.
Sincere Meditations
Born with a severe facial disfigurement, David Roche has turned his "flaw" into a source of strength and he brings this to his audiences.
Support Works Online
Resources to find or form support groups related to facial difference. Information on medical research.
The Craniofacial Foundation of Arizona
Provides information and support for people with head and face disfigurement. Happy Faces Family Network is a non-medical organization of volunteers, aiming to raise public awareness of craniofacial problems, promoting community acceptance and understanding.
The Craniofacial Society of Great Britain and Irel
Information about the society, which is a multidisciplinary forum for specialists.
The DRM WebWatcher: Facial Differences
A Disability Resources monthly guide to online resources about craniofacial differences.
The New Face Foundation
A non-profit corporation that treats children born with facial and craniofacial deformities such as cleft lip and cleft palate.
The Personal Side of Craniofacial Differences
Personal accounts of living with craniofacial conditions, and related webrings.
XP Support Group
UK-based organisation giving support, help and information to those affected by xeroderma pigmentosum and other photosensitive conditions.