Organized in 1993 to assist in the medical care of children and adults with tuberous sclerosis.

Site includes contact e-mail sites for board members across Canada, fact sheets about TSC, a forum for sharing information, and portions of the TSCST newsletter, Connections.

Kolten's story about living with this disease. The daily seizures that took over his life and the amazing surgery that gave it back to him.

Marian's story. Information about the disease, pictures, contacts, medicine, links.

Personal journal of a mother focused on her son's rare genetic disorder, which causes tumors in multiple parts of the body and causes neurological symptoms. Includes patient stories.

A list of synonyms, a summary and major features of tuberous sclerosis.

Offers alternative names, a general discussion and further resources.

Offers commonly asked questions about this disease.

Nonprofit dedicated to raising awreness about Tuberous Sclerosis Complex; raising fund for The Children's Hospital of Phila., The Epilepsy Foundation, The Tuberous Sclerosis Alliance. Includes info links and Tamara's health updates.

A short information sheet on this disease compiled by NINDS, the National Institute of Neurological Disorders and Stroke.

An incurable genetic condition that causes tumors to grow in various places in the body.

US advocacy and support organization provides information about tuberous sclerosis complex, research on its genetics and treatment, and support for patients and their families.

UK charity supporting sufferers, promoting awareness, and seeking the causes and best possible management of this genetic disease. Resources for patient families and information on this condition.

Developed by the National Institute of Neurological Disorders and Stroke (NINDS).

A brief definition of, followed by links to overviews, research articles, case reports and images.