Information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.

A parent's personal experience, relating her daughter's story.

Information about anencephaly, such as possible causes and future prevention.

Definition, epidemiology, pathogenesis, clinical features, investigations, and management of anencephaly from a healthcare workers perspective.

Personal stories, photos, tips for creating memories, advice on taking photographs, and tips for midwives. [Information in English, German, French, and Dutch]

An internet hub providing facts about anencephaly. Includes fact sheets and links for pre-natal support, information, policy, grief support, and memorial sites.

Non-profit support organization with information, personal stories, and resources for families, parents, and medical professionals.

Designed for those who are determined to carry their unborn child to term despite the child's fatal condition. Actively solicits tips from other mothers and fathers who experienced this.

Faith was diagnosed with anencephaly while still in the womb. Her mother, Margo, chose to carry her to term. Faith was born in March of 2001, and lived until October, 2003.

Provides an article about Anencephaly.

What the Committee on Doctrine National Conference of Catholic Bishops (U.S.) has to say about anencephaly.

A support group for women who have lost babies to anencephaly.

Global Health Network support group open to anyone affected by anencephaly.

A pro-life anencephaly support group for parents, relatives, professionals, or friends.