Marfan's patients diary of the diseases events in her life. Includes a list of links.

Includes definition, problems with blood vessels and cardiac valves, treatment, lifestyle changes, and links to other heart related conditions.

Information, articles, events, a patient survey, and products. Also contains an article on Pharaoh Akhenaten who was believe to have the disease.

Focuses on the support group with links to information about the disease. Includes a calendar of events for meetings.

Includes information on heart, skeletal, eye, other, causes, risks, management, and Surgery. Assisted by many graphics and a "tour" to help understand the disease.

Description, symptoms, diagnoses, treatment and other information with a couple of similar disorders for comparison.

Features forums, @marfanssyndrome.net email addresses and contains symptoms as well as guestbooks for both doctors and patients, a chat room and scheduled chats with professionals.

A global information center providing links to Organizations around the world.

Including lists of penpals and other ways to connect with the community as well as information about the Syndrome.

Personal site by which describes the pathology and gives a bit of advice.

This site is an in depth look into the life of someone who has Marfan Syndrome and what they have learned along the way.

The support association in the UK for this genetic condition which can affect the heart, eyes and connective tissue.

Support group in New South Wales, Australia.

A Question-Answer format page of information.

Comprehensive guide to this connective tissue disease.

Online interactive user community.

Article from eMedicine.

Online chapter from The Merck Manual of Medical Information.

Describes the author's personal experiences with this Syndrome and asks readers to share their experiences. Also include links for further research.

Explores the idea that the disease is affected not by the fibrillin gene, but by one's diet.

Information about an e-mail mailing list. Also includes links to other online support groups.

Irish charity with information on fund raising activities and the condition.

A comprehensive site including major resources listed as well as genetic information.

Providing accurate and timely information about the disorder to patients, family members and physicians.

General information including dealing with pregnancy with the disease. Also has contact information for the association and links to other organizations.

From the National Institutes of Health.

The association provides a network of patients, relatives and doctors in Slovakia, informs and helps patients to improve the medical care.

Information in English and Afrikaans,including an interactive diagnosis tool that allows for an accurate diagnosis.

Article on the risks of sports participation.

Here you can find plenty of information the disease including symptoms and other disorders that are similar to Marfan's. Also contains information about the Swedish Association.

A history of the pharoah along with theories applied to what he may have had, including Marfan's.

A tribute to a patient with this disease accompanied by information and links related to donating.

What the disease is and includes the impacts on daily life.

Includes a survey for study and links to useful sites.

Started by a person with the syndrome, this site offers support for any person with the disease as well as family of the person.