Personal site of a patient with vascular type EDS. Moon relates how she was diagnosed after one hospital missed a double aneurism - fortunately a second hospital discerned the problem before it was too late! Pictures included.

Hypermobility can be a problem for both massage therapists and clients, AMTA discusses solutions therapists can readily employ.

While EDS and Arthritis are two separate diseases, there are many characteristics in common. Additionally, EDS patients are at risk of developing OA. In addition to EDS information, site provides valuable pain and life management resources for patients.

If you or a family member with EDS needs surgery, read this and share it with your doctor.

Research organization for genetic connective tissue disorders.

Information regarding laboratory testing for different EDS types. Also includes limited information on Tenascin-X Deficiency Syndrome, a recently discovered disorder that shares symptoms with EDS.

Some EDS patients have obtained excellent results with prolotherapy treatments.

Learn what it's like to live with EDS for this woman and her children by following her online journal.

The newsletter for, by, and about people with the condition. Includes featured articles, columns, and contact information for support groups worldwide.

Support for sufferers of the Ehlers-Danlos Syndrome and related Hypermobility Syndrome and provides some information for the medical profession and general public.

A Syrian patient gives a personal plea for better medical support and research.

American nation-wide support and information to those affected by EDS. Includes many articles, message boards, chat room, information for medical professionals, and regional support groups.

Support group for individuals and families from Michigan and Indiana who have the condition. Meetings are held in South Bend, Indiana. Includes schedule and maps.

A series of short articles regarding genetics, diagnosis, treatment, and coping for people with EDS from the University of Washington's Orthopedics and Sports Medicine Department.

Explores connection between EDS and low blood pressure.

Doctor-produced information on the different types of EDS, including Tenascin-X Deficiency; treatments, pregnancy considerations, and more.

This site offers extensive information for patients and doctors, plus links.

Local Philadelphia, PA support for EDS and connective tissue disorders, also offers a Service Guide for Invisible/Hidden Disabilities.

Eaton Hand provides a glimpse inside the hand, wrist, and elbow. Discover how your joints are supposed to work, what goes wrong in dislocations, and how injuries and ailments are treated.

Article by two dermatologists covers many patient concerns regarding skin, joints, blood vessels. Includes potential treatments.

Expands on NORD's information about EDS, includes great detail on symptoms and cross-over of types.

Offers information & support for ehlers-danlos syndrome, joint hypermobility, fibromyalgia, and several other related disorders.

This is a moderated discussion board for Hypermobility Syndrome, Marfan, and Ehlers-Danlos. Includes personal experiences, traditional and alternative treatment, and pain management tips from fellow patients.

Serves as a window to message boards, medical articles, support groups, and other resources for people with hypermobility disorders.

Offers a support, message and discussion center for NY/NJ ehlers-danlos patients.

Information about EDS from the National Organization for Rare Disorders.

EDS causes many dental concerns that you, your dentist, and your medical team must be aware of. This excellent article covers the problems and solutions in detail.

Explores environmental and nutritional links in healing connective tissue disorders (Ehlers-Danlos, HMS, Marfans, and others)

Working together to provide assistance, support and resources for people living with this rare genetic disorder.

HMSA serves people with Hypermobility Syndrome, Ehlers-Danlos, and related joint disorders with information, referrals, message boards, and much more.

The purpose of the association is to support members, to inform them and their families, physicians, dentists, other nursing staff and the general public about EDS concerning symptoms and consequences. Find contact details and links.

Press release about the recall of Vioxx, a drug commonly used to treat EDS-related arthritis. If you have been taking this medication please contact your doctor immediately for instructions.

Technical information on joints, how they should work, and treatments for when they do not.