A portal site that provides an online community for children, teens and adults with xeroderma pigmentosum.

Offers alternative names, a general discussion and resources.

Includes summaries of genetic research results and citations.

Online booklet providing a general overview and description of the disorder and answers to frequently asked questions. Produced by the US National Institues of Health. [PDF Format]

An article about this disorder in English and Italian along with some images.

Resource for information about the disease and about the not-for-profit support organization devoted to supporting patients and families and promoting research. Links, contact information, XP Society news about fund raising events and the unique Camp Sundown program.

UK-based organisation giving support, help and information to those affected by xeroderma pigmentosum and other photosensitive conditions.