A personal account from a family in Australia about Sammy-Joe, who was born with this disorder. Contains an online journal and links to related sites.

Personal history of a girl in France. [English/French]

Description and links.

Provides support, information, education and advocacy for individuals and families affected by ichthyosis. F.I.R.S.T. supports research into causes, treatments and a cure for ichthyosis.

Hair and hair disease information with answers to common questions, treatment details, book reviews, web links.

Australian member of parliament, Maria Vamvakinou, announces a day to promote awareness of genetic disorders.

Trichothiodystrophy, the synonyms, a summary and a list of the major features.

A short technical document discussing the condition. Contains enlarged photographs of damaged hair shafts, and references to other medical papers.

Uniting parents and individals who's loved ones have the Trichothiodystrophy Syndrome

For families as well as patients who are looking for information, contact and support for people living and dealing with trichothiodystrophy.