Information about the BDFA, which provides supportive, informative, networking for the families, carers and professional giving care to children and adults with this disease in the United Kingdom.

Information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.

BDSRA goals, support groups, local chapters, and resources for parents and families of Batten Disease patients.

Details a boy's fight against Batten's Disease and dedication to promote awareness to help find a cure.

An in depth article on this disorder, includes the stages of the disease and the symptoms.

Created to engage in education and medical research toward diagnosis, treatment and/or cure of Juvenile neuronal ceroid lipofuscinosis (Batten disease) and to assist persons with the disease.

Information for parents and families of Battens victims.