Kawasaki Disease
Guidelines for Long-term Management of Patients Wi, Kawasaki Disease, Kawasaki Disease Foundation, Kawasaki Family Network
Carson's Heart Page
Dedicated to a child who had surgery for congenital disease.
Children and Heart Disease
The normal heart, defects, heart murmurs, kawasaki disease, treatment, school programs and feeding an infant with congenital heart disease. Information provided by the American Heart Association.
Experience Journal - Pediatric Heart Disease
Features stories and personal experiences from families about what it's like to live with their children's heart disease.
Healing Your Child's Heart
General information for parents about heart surgery from the University of Chicago Children's Hospital. The procedure, the hospital stay, what to expect as your child recovers, and taking care of your child at home.
Hypoplastic Left Heart Syndrome
Parent's personal account of her child's illness and surgery. Includes links, diagrams and information about the condition and the Norwood surgery.
Little Hearts
Provides support and information to families of children with congenital heart disease. Offers useful links, parent matching, email groups and activities.
Pacemakers for Children
Provides easy information for children, about pacemakers, what they do, and the surgery involved.
Pediheart
Explains the normal heart and how it is affected by disease in children.
Rush Children's Heart Center
Provides tutorials about cardiac disorders, diagnostic tests and the normal heart for health professionals, parents and children. Includes illustrations, animations and movie clips to aid learning.
Scott's Heart Page
Personal story about a child born with several heart defects; single ventricle, atrial septal defect, pulmonary atresia, tricuspid stenosis and dextrocardia. Includes some general information and links.
The Baby with Tetralogy of Fallot
Offers information for parents including brief explanation of the disorder, links and care of the baby awaiting surgery.
Transposition of the Great Arteries
Provides information about diagnosis, treatment and effects on the health of the child. Written for parents.